Jeramy’s FND Journey

Tag: Rehabilitation

  • It’s Been a Month

    It’s Been a Month

    I am learning to be selfish in sacred areas (my family, my exercise & daily stretches, my children, reading and music, and the simplicity of doing nothing). I have found that as I reorient my perspective and be happy in myself, whether having a lousy day, celebrating a win, or being grateful, I can still…

  • DISABILTY SUPPORTS STARTS – REFLECTIONS – NDIS

    DISABILTY SUPPORTS STARTS – REFLECTIONS – NDIS

    I don’t accept gaining support from the government (NDIS) as a victory or something to celebrate. We need to change the perspective; people with disabilities shouldn’t need to fight and live their worst lives before support is possible. People with disabilities should have access to support. We need to change our perspective from the NDIS…

  • Psychology – Seven Years of No.

    Psychology – Seven Years of No.

    Mental health was a dirty word growing up, and the negative stigma placed on these illnesses grew an unhealthy and unbalanced approach to supporting

  • NDIS Take 4

    NDIS Take 4

    I got emotive at the NDIS hearing, explaining all the work I had done over the 12 months prior, the reports, the specialists consults, the thousands upon thousands of dollars spent on reports, working with a specialist OT going line by line over the NDIS access guidelines.  I’m still not being heard!!

  • Loss; Coming to Terms with a Permanent Disability.

    Loss; Coming to Terms with a Permanent Disability.

    If I’m being honest, I’ve been quiet these past few months (on social, blogs, and talking about progress, or lack thereof). Writing has been too hard because life’s been hard.

  • NDIS Knock Back No. 2

    NDIS Knock Back No. 2

    I have been working on my NDIS application since August 2022, with nearly six months of evidence collection, specialist appointments, and storytelling. Rejected. #fnd #fndawareness #fndwarrior #fndaware #withfnd #chronicillness #disability #functionalneaurilogicaldisorder #functionalneurologicaldisorderawareness #functionalneurologicalsymptomdisorder #functionalneurology #NDIS

  • Disability Support Declined

    Disability Support Declined

    In my previous blog, I wrote about the fact my disability is permanent. My current state is my new normal. The ironic thing is that the NDIS declined my application due to their opinion of my disability not being permanent or, in NDIS language, ‘fully treated’. This is despite having letters confirming my disability from…

  • My Disability is permanent. My current state is the new normal.

    My Disability is permanent. My current state is the new normal.

    This doesn’t feel like a completion or a success. Yes since hospital admission I have progressed from a standing frame, wheelie walker to crutches. But then we have a full stop. I have arrived at my new normal. I’m struggling to be ok with this.

  • Visit to a specialist

    Visit to a specialist

    The more I document, reflect, and share my story, the more I accept that this is a permanent condition. Yes, there are ways to ease my pain, improve mobility, reduce muscle tightness etc. The simple fact is I have a disability that I and others around me will need to adjust to this constantly.

  • FND, I didn’t sign up for this.

    FND, I didn’t sign up for this.

    I have been struggling this week! I’ve started the journey this month of collating evidence of my permanent disability. I have found this confronting, and honestly has lowered my mood. Having to ask health professionals to test and prod, explain my FND symptoms has caused me to reflect back on my flare-ups. I’ve dug up 7…