Jeramy’s FND Journey

Tag: Neurological

  • My Disability is permanent. My current state is the new normal.

    My Disability is permanent. My current state is the new normal.

    This doesn’t feel like a completion or a success. Yes since hospital admission I have progressed from a standing frame, wheelie walker to crutches. But then we have a full stop. I have arrived at my new normal. I’m struggling to be ok with this.

  • The Story So Far

    The Story So Far

    I’ve had so many diagnoses over the years that it’s laughable. Muscle strain, muscle spasms, cramping, bursitis, partial dislocations of the hip, ataxia of unknown origin, arthritis (at various times noted in the hips, knees, and back), deferred pain, mainly in the stomach (which led to so many stomach-related investigations), chronic pain, lower back pain,…

  • When Life Gives You Lemons.

    When Life Gives You Lemons.

    Balancing ‘normal’ family life, work, and the day-to-day hiccups we call life together has always been challenging. So adding a functional neurological condition, compounded with chronic pain, was not a welcomed bedfellow. While working through my new normal, we have needed to concurrently navigate some significant medical concerns with one of my daughters. Jenna has Autism, making planning…

  • The New Normal

    The New Normal

    My doctors think I am pushing harder than others with similar conditions. I’m convinced that I need to do more, and my family are providing the balance.

  • Juggling Medications

    Juggling Medications

    Every three months I see my pain specialist at Sydney Spine & Pain for a review, check on the stimulator and an open discussion on the reduction of my pain medication. We discuss the decrease in my pain patch, whether to juggle the medicines for neuropathic pain and mapped my pain levels since we last…

  • A Day in Rehab

    A Day in Rehab

    Each afternoon I head to the gym. This is 45-60mins of pain. I am pushing through the tremors and doing essential, repetitive exercises and mainly focusing on two things. 1. Conditioning and strength building, 2. I am working on resetting those signals with the brain through repetitive tasks.

  • Yes I’m Fine

    Yes I’m Fine

    If I reflect on the past seven years, battling with mobility issues, whatever label you want to put on it. I have been a stubborn arse. I run run run; my body collapses, I run run run, my body collapses. This has happened six times so far, with many, many near misses that I have…

  • The Story So Far

    The Story So Far

    I’ve been ‘unwell’ in my current state since 2015/16, so seven years of not understanding the ‘WHY’ about my chronic pain, tremors, and functional neurological disorder. Therefore I needed to focus on one avenue to ensure some kind of normality for myself and my family. I’ve focused on pain management for the past seven years,…

  • The Story So Far

    The Story So Far

    I’ve been ‘unwell’ in my current state since 2015/16, so seven years of not understanding the ‘WHY’ about my chronic pain, tremors, and functional neurological disorder. Therefore I needed to focus on one avenue to ensure some kind of normality for myself and my family. I’ve focused on pain management for the past seven years,…